Terri: The Truth, by Michael Schiavo with Michael Hirsh (2006)The right-to-die issue is an emotional topic for many and it would be hard for some to find this book by Terri Schiavo's husband and not have some bias even before they scan the title page. In the interest of full disclosure, this reviewer agreed with Michael Schiavo's decision to remove his wife's feeding tube before having read the book. Those who agree strongly with Terri's parents, Robert and Mary Schindler, are fairly warned.
In 1990, Terri Schiavo collapsed in her home and experienced cardiac arrest. The 26 year old fell into a coma for ten weeks and was diagnosed several years later as being in a persistent vegetative state.
In 1992, Michael pursued a malpractice trial against two of his wife's former physicians on the grounds that they should have diagnosed his wife with bulimia and recommended a course of treatment. (Terri had weighed as much as 250 pounds as a teenager but had thinned considerably prior to meeting Michael. At the time of Terri's collapse, her weight had plummeted to 110 pounds.) Michael Schiavo writes that the Schindlers supported Michael in his legal action, and had to this point never voiced any concerns about how Michael had cared for their daughter since her collapse.
According to Schiavo's account, it was only after Bob Schindler confronted Michael about the settlement money on Valentine's Day 1993 that Michael's relationship with his in-laws took an ugly turn. Michael claims that Bob felt entitled to some of the settlement money that had largely been allotted for his daughter's care.
After the Schindlers' unsuccessful bid to assume their daughter's guardianship, years of feuding between Michael and his in-laws followed. In the meantime, Terri's condition did not change in any discernible way. Michael's decision to remove his wife's feeding tube in 1998 set off a flurry of court filings, appeals, and 11th-hour legislation that he details in his book.
Michael writes that this work is not a legal analysis of the many court decisions - although there is ample detail provided - rather it is the story of what he went through as a man, as Terri's husband, during these years. Given the furor exhibited by right-wing talk radio and even the U.S. Congress' passage of "Terri's Law," I believe Mr. Schiavo when he writes that he received death threats and other forms of intimidation during the many years he tried to carry out what he believed were his wife's wishes.
After all he's been through, it's understandable when Michael comes off as bitter but one thing he is not in this book is glib. He meticulously details his efforts to care for Terri, a point corroborated by one facility which dubbed him the "nursing administrator's worst nightmare."
As one can imagine, a debate with this level of passion will contain an abundance of attacks and counterpunches. The Schindlers asserted that tests indicating trauma to Terri's body in 1991 provided evidence of physical abuse. On the other hand, Michael claimed that the Schindlers wanted his wife's malpractice settlement to save their own shaky finances. Even so, to agree with the Schindler family after reading this book, one would have to ignore the scientific fact that Terri's cerebral cortex had completely liquefied, meaning that Terri had no hunger or thirst impulse, she was blind, and that she was not in any pain. One would also have to dismiss the rulings of a dozen court hearings, which all ruled that Michael Schiavo had the right to stop the artificial feeding that was keeping Terri alive. Most importantly, one would have to dismiss the right of a loved one or power-of-attorney to choose to stop treatment when it is clear that there is no hope of recovery.
This provocative book deserves to be read by persons on all sides of the right-to-die debate. Unfortunately, it may likely be shunned by many because of their preconceived notions toward the subject matter. The Schindlers have written their own book,
A Life That Matters: The Legacy of Terri Schiavo. Books @ LP will review this volume in the coming months.
Labels: current events, ethics, law, medicine, non-fiction